Young adults with type 1 diabetes (T1D) frequently struggle to manage their condition and report poor clinical outcomes. The aim of this study was to identify a core outcome set (COS), a minimum set of outcomes that could be measured in future research.

The research team engaged an international sample of key stakeholders including young adults living with type 1 diabetes, diabetes health professionals, diabetes researchers and people who inform policy on diabetes services.  A list of 87 outcomes commonly used in intervention studies involving young adults with type 1 diabetes was generated from a published systematic review and discussion among the research team. Utilising this list, a two-phase eDelphi survey to rate outcomes was conducted, followed by a consensus meeting at NUI Galway to agree the Core Outcome Set.

Following discussion at the consensus meeting, 27 outcomes were deemed ‘high support’, and were voted upon in the final voting-phase of the meeting. Nine core outcomes were agreed. It is envisaged that these COS will facilitate future research to improve outcomes for young adults with T1D, and more research is needed to identify the best measures for the core outcomes.

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